Dataset inventory at HIC
HIC hosts a range of linkable routinely-collected, person-based administrative datasets combining datasets for the Tayside and Fife population and Tayside, with local speciality research, and clinical datasets.
Clinical datasets
| Clinical datasets | Description | Time period |
| Accident and Emergency (A&E) | Tayside Accident and Emergency | 2006 > |
| Fife Accident and Emergency | 2004 > | |
| Adverse Incident Management (AIM) database Tayside | Query access to system, not holding a copy of database | |
| Ambulatory Holter Monitoring | Tayside Cardiovascular patients - 24 hour heart activity monitor data | 2003 > 2011 |
| Child Health Surveillance Program (CHSP) (Pre-School) | Tayside pre-school surveillance examination results | 1996 > 2007 |
| Child Health Surveillance (CHSP) (School) | Tayside primary/secondary school surveillance examination results | 2003 > 2007 |
| ECHO cardiogram dataset | Tayside Echocardiographic | 1994 > |
| Epidemiology of Liver Disease in Tayside (ELDIT) | Collated research database of approx 10,000 cases of liver disease | 1991 > 2003 |
| Foot Clinic | 2003 > | |
| Heart-disease Evidence-based Audit & Research Tayside Scotland (HEARTS) | Tayside coronary heart disease patients | 1998 > 2006 |
| Walker | Over 48,000 Dundee birth records | 1952 > 1966 |
| CLEFTSIS | Tayside Orofacial Clefts Dental | 1990 > 2011 |
| Childsmile | Scottish Childsmile program - Dental Interventions | 2007 > |
| Heart Failure Nurses | Tayside Heart Failure patient | 2009 > 2013 |
| ISD SMR00 | Tayside & Fife Hospital Outpatient | 1997 > |
| ISD SMR01 | Tayside Acute Stay Hospital Admissions | 2000 > |
| Fife Acute Stay Hospital Admissions | 1981 > | |
| TOPAS SMR01 | Tayside Acute Stay Hospital Admissions | 1996 > 2011 |
| ISD SMR02 | Tayside Maternity | 1975 > |
| Fife Maternity | 1997 > | |
| Evolution SMR02 | Tayside Local Maternity System | 2004 > 2012 |
| ISD SMR04 | Tayside Psychiatric Returns | 1981 > |
| Fife Psychiatric Returns | 1997 > | |
| ISD SMR06 | Tayside Cancer Registration | 1980 > |
| Fife Cancer Registration | 1997 > | |
| ISD SMR11 | Tayside Neonatal (includes some home births) | 1980 > 2002 |
| Fife Neonatal | 1997 > | |
| ISD SMR25 | Tayside Substance Misuse - awaiting delivery from ISD | |
| Fife Substance Misuse | 2008 > 2014 | |
| Community-dispensed prescription | Tayside | 1993 > |
| Fife | ||
| Prospective Breast Cancer Clinic | Tayside | 1999 > 2012 |
| Renal Register | Tayside Dialysis and Transplant Patients | 2002 > |
| Rheumatology | Rheumatoid Arthritis clinical system used in support of care for patients attending clinics in Tayside. | 2003 > 2009 |
| Fife Rheumatoid Arthritis data covers a smaller time period and is available on a project specific basis. | ||
| Scottish Care Information - Diabetes Collaboration (SCI-Diabetes) | Tayside and Fife Diabetic Patients | 1996 > |
| Standard Immunisation Recall System (SIRS) | Tayside Pre-school Immunisations | 1987 > 2010 |
| Stroke | Stroke clinical system used in support of care of patients attending stroke clinics in Tayside | 1996 > 2014 |
| Tayside Allergy & Respiratory Disease Information System (TARDIS) | Tayside COPD & Lung Cancer Patients | 2001 > 2013 |
| Thyroid Epidemiology, Audit & Research Study (TEARS) | Tayside Thyroid Patients | 1969 > 2010 |
| Vascular Laboratory | Vascular CARSCAN and SEGPRES | 2000 > |
| Vascular Duplex Doppler | 2008 > | |
| Contraception | From Tayside Family Planning Clinics Using Legacy, ToPAS, NaSH |
Laboratory datasets
| Laboratory datasets | Description | Time period |
| Biochemistry | Tayside Biochemistry | 1992 > |
| Fife Biochemistry | 2008 > | |
| Haematology | Tayside Haematology | 1992 > |
| Fife Haematology | 2012 > | |
| Immunology | Tayside Immunology | 1993 > |
| Fife Immunology | 2012 > | |
| MicroBiology | Tayside MicroBiology | 1998 > |
| Virology | Tayside Virology | 1995 > 2013 |
| Pathology | Tayside Pathology | 1992> |
Non clinical datasets
| Non clinical datasets | Description | Time period |
| National CHI | CHI data for Scotland | 2009 > |
| Area CHI for Tayside | CHI data for Tayside | 1994 > 2008 |
| Area CHI for Fife | CHI data for Fife | 1989 > |
| 1991 Census data | 1991 Census | 1991 |
| 2001 Census data | 2001 Census | 2001 |
| GRO Death Certification | Official Death Certification for Tayside | 1989 > |
| Official death certification data for Glasgow & Fife | 2006 > | |
| Official death certification data for all of Scotland | 2012 > | |
| Head and Neck Cancer | Data from the Ninewells and local Fife Head and Neck Cancer Clinic | |
| UCAT | University Clinical Aptitude Test Research linked to UCAS & Medical School Data | 2006 > |
| Computerised Radiology Information System (CRIS) | Tayside & Fife Radiology (e.g. X-ray, CT Scans) | 1993 > |
| SMERC | NHS Education for Scotland (NES) training | 2009 > |
| Comprehensive Geriatric Assessment (CGA) | Fife |
Research project datasets
| Research project datasets | Description | Time period |
| Scottish Dementia Clinical Research Network (SDCRN) | Register of Dementia patients and their carers | 2008 > |
| Wellcome Trust Case Control Consortium Study (GoDARTS) | HIC-managed cohort for a resource for the genetic epidemiology of Type 2 diabetes. Data collected on approx. 18,000 cases/controls | 2004 > 2009 |
| GoTARDIS | Tayside Genetic Markers of Sputum MMP Activity in COPD and Asthma | 2001 > 2013 |
| CPIPS | Scotland-wide clinical collection relating to children with cerebral palsy with musculoskeletal problems | 2013 > |
| Epilepsy Register | NHS Tayside clinical record of epilepsy patient treatment | 2014 > |
| Type 1 Diabetes Bioresource | Research tissue bank of blood cells and urine samples linked to clinical data for the study of type 1 diabetes | 2010 > |
| Biomarkers Of Liver Disease (BOLD) | National Liver Disease | 2013 > |
| Weight Management Clinics | Clinical record of Adult and Child weight management clinics in Tayside | 2014 > |
| EMBARC | Pan-European Multicentre Bronchiectasis database incorporating baseline data collection with annual follow-up data | 2014 > |
| Scottish Family Health Study | Scotland-wide multi-generational resource of data and biological material collected from over 30,000 participants | 2009 > |
| SUMIT | Linked activity & outcomes data from the care, treatment and rehabilitation pathway for substance misuse in Tayside | 2011 > |
| SHARE | Scottish Population Health Research Register of all Scottish residents who consent to being considered for participation in a range of studies | 2013 > |
| Botulinum Toxin in Neurological Disorders Extended Recording System (BINDERS) | Clinical data from Dystonia and Spasticity clinics relating to the administration of Botulinum neurotoxin | 2014 > |
| TASCFORCE | 5000 MRAs normal volunteers, Tayside. Study to prevent heart disease and stroke | 2008 > |
| SHARP | Scottish Heart and Arterial Risk Prevention Data - 21k patients | 1991 > 1996 |
| Scottish Healthy Heart Study | 20,000 subjects recruited | |
| POPADAD | 1200 patients with Diabetes and no clinical CVD: Scotland | |
| TRACE RA | 3200 Rheumatoid Arthritis samples: UK |
Contact
Christopher Hall
+44 (0)1382 383718
[email protected]