Research project

Multiple and multi-dimensional transitions

Understanding the life transitions of young adults cared for by CHAS and the impact on their parents, siblings and professionals

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Status

Completed

Start date

May 2015

Completion date

May 2015

Funding

Funders

Children's Hospice Association Scotland (CHAS)

This study aimed to gain a clear understanding of the life transitions of young adults with life limiting conditions as they move to adulthood, as well as the impact of the young adult’s life transitions and choices on significant others (namely families, professionals) and vice versa. The study was longitudinal with methodological and source triangulation. Data were collected from 12 young adults, 10 family members and 11 professionals. Please access the Executive Summary for more information and contact Divya Jindal-Snape for a copy of the full report.

People

External team members

Professor Bridget Johnston, Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, School of Health Sciences, The University of Nottingham

Dr Jan Pringle, Transformative Change: Educational and Life Transitions (TCELT) Research Centre, School of Education, Social Work and Community Education, University of Dundee

Libby Gold, Associate Nurse Director for Care, Children's Hospice Association Scotland

Jayne Grant, Clinical Nurse Manager for Clinical effectiveness, Children’s Hospice Association Scotland

Dr Ros Scott, Transformative Change: Educational and Life Transitions (TCELT) Research Centre, School of Education, Social Work and Community Education, University of Dundee

Dr Pat Carragher, Medical Director, Children's Hospice Association Scotland

Dr Raymond Dempsey, Registered Counselling Psychologist, consultant psychologist to Children's Hospice Association Scotland