Multiple and multi-dimensional transitions: Understanding the life transitions of young adults cared for by CHAS and the impact on their parents, siblings and professionals

This study aimed to gain a clear understanding of the life transitions of young adults with life limiting conditions as they move to adulthood, as well as the impact of the young adult’s life transitions and choices on significant others (namely families, professionals) and vice versa. The study was longitudinal with methodological and source triangulation. Data were collected from 12 young adults, 10 family members and 11 professionals. Please access the Executive Summary for more information and contact Divya Jindal-Snape (d.jindalsnape@dundee.ac.uk) for a copy of the full report.

 Download the Executive Summary (PDF)


Partners/collaborators

Professor Divya Jindal-Snape, Transformative Change: Educational and Life Transitions (TCELT) Research Centre, School of Education, Social Work and Community Education, University of Dundee (d.jindalsnape@dundee.ac.uk)

Professor Bridget Johnston, Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, School of Health Sciences, The University of Nottingham (Bridget.Johnston@nottingham.ac.uk)

Dr Jan Pringle, Transformative Change: Educational and Life Transitions (TCELT) Research Centre, School of Education, Social Work and Community Education, University of Dundee

Libby Gold, Associate Nurse Director for Care, Children's Hospice Association Scotland

Jayne Grant, Clinical Nurse Manager for Clinical effectiveness, Children’s Hospice Association Scotland

Dr Ros Scott, Transformative Change: Educational and Life Transitions (TCELT) Research Centre, School of Education, Social Work and Community Education, University of Dundee

Dr Pat Carragher, Medical Director,Children's Hospice Association Scotland

Dr Raymond Dempsey, Registered Counselling Psychologist, consultant psychologist to Children's Hospice Association Scotland


Publication resulting from project

Jindal-Snape, D., Johnston, B.M, Pringle, J., Gold, L., Grant, J., Scott, R., Carragher, P. & Dempsey, R. (2015). Multiple and Multi-dimensional transitions: Understanding the life transitions of young adults cared for by CHAS and the impact on their parents, siblings and professionals. Dundee: Report for CHAS.


Funding/Funder

Children's Hospice Association Scotland (CHAS)